Let me first start off by saying that my name is Leigha Hoffner and I am the founder and president of A Cure for Bassen Kornzweig Foundation. My son Jamil who is 3 years old has this rare genetic disease that is slowly killing him. I started this foundation because I thought it was so terrible that no one cared enough to help these children. More so that no one could or would help my son.

I plan to use this as a chance to keep our visitors up to date on Jamil, the foundation, and current information concerning what we are doing so that those who are suffering from this or have children who are suffering from this do not feel the same way that I do on a daily basis.

We ask that you please if nothing else help us in spreading the word about this disease and the foundation and at the very lease follow our blog so that others may enjoy this as well.

We want to take this chance to introduce everyone so that as you read our blog you can follow who we are talking about.

First, me! I am the one for right now that is writing the blog, designing the website, and posting everything until I can find someone to help me.

Second, Jamil. Jamil is 3 years old and is suffering from Bassen Kornzweig Syndrome. Jamil currently has over 19 different diagnosis and is not doing well. He is the inspiration for the foundation.

Third, Baron. Baron is the Vice President and Co-Founder and he is also Jamil's father.

Then we have people like Mildred who is the treasurer, Keisha who is the secretary, Lois who is in charge of the child and parent resource committee, Toni and Chantelle who are in charge of the childrens community development committee.

Please ask us any questions we will be glad to answer them, we love to hear from our readers and know that we are helping someone.